Rett Syndrome Research Trust
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Thursday, September 5, 2013. 156,000 is needed by December 2013 to fund this project.
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My voice; my life with Rett Syndrome. The ABCs of Rett Syndrome. Apraxia, aphasia, which keeps us silent. Brilliant minds wanting to break out of the bodies that trap us. Courageous girls who fight against all odds, to communicate so others might comprehend. Devastating defining characteristics suffered by daughters around the world. Education we long for, experiences we miss out on. Families fighting side by side for a cure. Hard Some days are just hard.
Take a look around! We have a ton to share with you! And please share with us! Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Girl Power 2 Cure items. Gluten and Dairy Free Recipes. Welcome to Rett Girl! .
Monday - Thursday 12-9 Friday 12-10 Saturday 4-10 Sunday 4-8. Website designed by Jantris Marketing Services, LLC.
Centerpieces and Event Decor! Our custom centerpieces are a fun alternative to traditional flower bouquets for any special event. Check out images from some of our past events and then contact us if you are interested in something custom, made just for you! Featured Product - The Beaumont Pendant.
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Rett Syndrome Research Trust
Ingrid Harding
121 Ave of Two Rivers
Rumson, New Jersey, 07760
US
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By funding the most Rett Syndrome research worldwide, we strive to put ourselves out of business as soon as possible. Making Rett History.PARSED CONTENT
The website reverserett.org had the following in the web site, "Join our mailing list to stay in the loop and learn more about advances in research and upcoming events." I viewed that the webpage stated " No spam, just monthly updates." They also said " No spam, just monthly updates. 5 Million to Research in 2016. How Was it Spent? Of Mice and Rett Novel Therapeutics and Community Support. The Joy and Ache of the Holidays. What Does it Mean for Rett? Crowdfunding for Rett Research. Gene Therapy Consortium Progress Update."SEE SUBSEQUENT WEB SITES
A personal message for parents. Five key resources for new families. Register someone with Rett Syndrome. Register someone with Rett Syndrome. Register someone with Rett Syndrome. Tell us who you are. We fund more Rett Syndrome research. Than any other UK charity. Help us to reverse the effects of Rett. Set up a monthly donation.
Rett Syndrome Research Trust UK. As a charity that is focused solely on raising funds to support research into treatment for Rett Syndrome and related MECP2. Disorders, we talk a lot about finding a cure. How severely affected is she? Instead, t.
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